Rett Syndrome Families – I wanted to share my “back to school” letter with you – I thought it might be something you could use to help introduce your daughter to her classmates. I make a copy to send home to the parents of each child in her class. I also attach on of her Purple GP2C Awareness Cards as well. If you have any questions just let me know – feel free to copy this, edit it, make it your own!
My name is Kelly, my daughter Brooklyn will be in Mrs. Berkesch’s second grade this fall. Your child might have been in kindergarten or first grade with Brooklyn, if not I wanted to introduce her to you!
You see, Brooklyn has Rett Syndrome. She has a damaged gene which regulates a special protein in our bodies. This protein helps us to walk, talk, and move around…..it really helps us do lots of things!
So, Brooklyn cannot walk, or talk, or even use her hands very well….but she is full of love, life, and energy, plus she is smart! She understands everything going on around her….she just cannot respond in words. She uses her eyes to communicate. Your child will see her using an eye-gaze board to communicate as well as answer questions in the classroom.
Brooklyn will also have a personal aide with her in the classroom at all times to assist her with classroom activities and procedures. She is SO excited to spend most of her day with some active, wonderful children!
My hope is that this will be a great experience for everyone. Brooklyn will learn from a wonderful teacher, fun students and friends! And, I hope, your child will learn about a different kind of “special” child. I’m sure they will have fun helping her learn and playing games! If your child is interested in hanging out with Brooklyn outside of the classroom, we would LOVE that too!
If you (or your child) have ANY questions or concerns, please do not hesitate to call me at home. My cell number is xxx.xxx.xxxx or my email is firstname.lastname@example.org If you or your child would like to learn more about Brooklyn or Rett Syndrome we would love for you to check out our blog at www.specialmommyx2.com
Thank you in advance for getting things off on the right foot and helping your child understand that Brooklyn is a fun little girl (just like your child) that just needs a little special help!
Kelly Butler (Brooklyn’s Mom)
*I took out my phone number since this is a public post